TFK Highlight a Charity Thread

[QUOTE=“theLockes, post: 1128713, member: 58”]That’s great to hear. Little Derbhla is a child with Down syndrome. She’s not at Special Olympics level yet but she’s as good as Ben and Jerry at football so I’d say it won’t be long. She’s the reason I cycle on the tour de munster event too; everything raised goes to the 6 branches here in the south. But that’s for another day.

https://www.youtube.com/watch?v=bmUZSUb_UnE
[/QUOTE]
That’s class. My aunt had Down Syndrome and lived with us for the last few years of her life. She was an inspiration to everyone who met her. Put first world problems firmly in their place when you saw how she faced adversity. For the last 10 or 11 years of her life, she had a lot of interaction with Down Syndrome Ireland and the quality of her life and the way she interacted with people increased exponentially every year. They are fantastic.

[QUOTE=“Tipper, post: 1128597, member: 68”]Haven’t posted on here in a long time but liked this thread.
It is Cystic Fibrosis Awareness week so if anyone fancies donating…
Text 65Roses to 50300 for a €2 donation
This is my wee lad in the pic on the main website
https://www.cfireland.ie/index.php/get-involved1/working-with-business
He is 4 now and goes through a lot of treatments each day but gets on with it.
He is at the age now where he knows he is different - it is quite a lonely disease for kids with CF as they never meet anyone else with CF (due to risk of cross infection) so they find it hard to understand why they are the only ones doing physio/nebulisers/medication etc everyday.
Anyway - feel free to text the number above!!
Cheers![/QUOTE]
Donated €10 just now. Great cause and the very best wishes to yourself and your son for the years ahead, CF is an absolute cunt of a disease. And here’s an idiot like me damaging their lungs through choice by smoking. Makes me feel both stupid and guilty.

could be a lucrative day for CF Ireland if all your aliases feel the same way.

My Trocaire box is still at home. Never got around to dropping it somewhere after Lent. Some amount of change in it.

Give it somewhere worthwhile rather than that shower.

Manuel Zelaya is a wealthy sort. Kev will offer up a set of tools for auction.

@Tipper you seem very positive in what looks like a negative situation. Fair play to you man, I’m sure your boy gets a lot of good energy from you.

Thread reminds me of saffronandblue. He was a good lad

All BRILL BUT TOO MANY

some Charity keeps people down.
[B]
cerebral palsy

Rehab
spina bifta how many do we fuckung need.
[/B]

some Charity keeps people down.

Anyone see this? Remember there was a big thing about the Bumbleance having supplies robbed at the ploughing match.
Other directors claiming the ambulance wasn’t robbed at all and your man made it up!!!
Really really strange.
A few have resigned over “governance issues”. Which is a major red flag.

The chief executive of a children’s charity from which four directors resigned last week citing governance concerns has rejected suggestions of financial impropriety or any attempt by him to block a governance review.

http://www.irishexaminer.com/media/images/t/Tonyheffernan_large.jpg

Tony Heffernan, who set up the Saoirse Foundation, named after his daughter who died from Battens Disease, also said he was “very happy” for the gardaí to investigate a complaint from one of the directors that challenges his claim that the charity’s ambulance was targeted by a thief at last year’s National Ploughing Championship.

The alleged theft generated significant media coverage and the public dug deep to help out, with an estimated €40,000 received in donations.

However director David Hall, one of the four to resign, wrote last week to the Garda Fraud Squad alleging to have CCTV footage from inside the ambulance which shows a theft did not occur.

At the time, Mr Heffernan said equipment worth in the region of €800 was taken including leads for oxygen and saturation and pulse and blood pressure equipment. Yesterday he said the theft involved “consumables, non drug-related items”.

He also rejected the suggestion that media had been made aware of the theft before gardaí, saying he personally reported the matter to gardaí at the ploughing championships.

Mr Heffernan’s son Liam also died of Battens Disease. Both children died at age five.

When contacted by the Irish Examiner, three of the directors who resigned, including entomologist Tim Lavery and consultant paediatrician Dr Fergus Leahy, as well as David Hall, said they had resigned due to governance issues that had not been addressed.

The Foundation’s directors had passed a resolution at a board meeting of February 25 last to initiate an immediate governance review using named independent advisers who would look at the charity’s day-to-day operations and particular identified fundraising events, including the Dingle to Dublin Megapush, where an imitation Bumbleance was pushed to Dublin, arriving on All-Ireland weekend last September, with the objective of raising money to purchase a second Bumbleance.

However, the organiser, Mick O’Shea, wrote to Mr Heffernan in April saying he could not continue to work with the Saoirse Foundation because seven months after the Megapush had taken place, there was still no new Bumbleance and no date for delivery. Mr O’Shea said he was requesting the return of funds immediately.

He wrote to the charity regulator questioning the Saoirse Foundation’s accounting procedures, saying there was a circa €70,000 discrepancy between the first figure given for the Megapush and the second. Mr Heffernan blamed the delay in the ambulance purchase on the ambulance builders. He said yesterday that Mr O’Shea’s suggestion of a €70,000 discrepancy was “completely incorrect”.

Mr Heffernan said he had also written to the charity regulator Úna Ní Dubhghaill and she had said the most appropriate way to deal with the issues raised was to do so internally.

He said he had no objection to a governance review “by any of the big four” as long as it had a timeline and financial cap, which he said the review requested by the directors lacked.

The latest directors to resign are in addition to four more resignations between November last year and February this year.

Not unusual where somebody sets up a charity successfully (takes a certain drive and forceful personality to do that) that they treat the charity as their own which I suppose it is to an extent - as it scales, grows bigger and governance is needed the forceful personality that was necessary to get if off the ground becomes an Achilles heel and there can be a rationalising of actions that are taken.

Jesus that’s some mess. Hope to God it’s all above board.

This lady is fighting a tough fight in US at the moment. She has been called 6 times for a lung transplant and it hasnt yet gone ahead. Appears to have been called a 7th time and unclear if she has had the op or not. She is tweeting (or more likely someone in control of her account) that she is hooked up to life support at the moment.

An inspiring lady.

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Be very inspiring, and disturbing, if she was tweeting while on life support.

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I assume the definition of life support is loose enough. She likely needs a machine to do her breathing for her

Doesnt sound great for her really. Update below from her pal

**Belinda here. This is just a short note to ask you to hold Orla in your thoughts during these nights and days. As some of you will know from her social media updates, she is currently on life support in New York Presbyterian Hospital, where her team are working (in her words) around the clock to keep her alive. Previous transplant possibilities over the past weeks and months have not worked out for Orla (the lungs need to be exactly right for the recipient). She has been, and continues to be, incredibly strong, positive and generous in her spirit. She is waiting for her new lungs and believing that they will come. She has also, with her typical altruism, used her social media voice this evening to ask people to carry a donor card and let their families know of their wishes so that others may get the transplants they need. In Orla’s words: **

"Please carry a donor card and let your family know your wishes. Then you can live life and give life. Up to 8 people can be saved. I am currently on life support fighting intensely. Love x #beatcf #cysticfibrosis"

Fingers crossed for her.

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Amen to that. Don’t know her, never met her but really hope it all goes well. She really deserves it.